IRF2BPL Family & Research Meeting
in collaboration with Cincinnati Children's Hospital
Sept 22-23, 2023
Cincinnati Children’s Hospital Liberty Campus
7777 Yankee Road
Liberty Township (Cincinnati), Ohio
Click Link to RSVP: https://redcap.link/ozjdk9xx
Inaugural in-person meeting designed to bring patients, families, and researchers together to learn, connect, and innovate.
Attend in person to:
Meet other families impacted by IRF2BPL/NEDAMSS.
Learn from clinicians and investigators about management options.
Allow researchers and clinicians to learn about you and/or your loved one’s unique qualities and needs.
Contribute to research and make a difference.
Biorepository and blood sample collection by Combined Brain